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only in Connective_Tissue/Marfan_Syndrome
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Connective Tissue
:Marfan Syndrome
(25)
See also:
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome
(29)
Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Hypermobility Syndrome
(15)
This category in other languages:
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American Heart Association - Marfan's Syndrome
- Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
Canadian Marfan Association
- Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
A Diary about Marfan's
- Marfan's patients diary of the diseases events in her life. Includes a list of links.
International Federation of Marfan Syndrome Organizations
- A global information center providing links to Organizations around the world.
Life and Issues of Marfan's Syndrome
- Personal site by which describes the pathology and gives a bit of advice.
Living With Marfans
- This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
Marfan Association UK
- The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
Marfan Support and Information
- Support group in New South Wales, Australia.
Marfan Syndrome
- Article from eMedicine.
Marfan Syndrome
- A guide to this connective tissue disease.
Marfan Syndrome
- Online chapter from The Merck Manual of Medical Information.
Marfan Syndrome
- A Question-Answer format page of information.
Marfan Syndrome: Does Diet Play a Role
- Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
Marfan Syndrome Forum
- Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
Marfan-List
- Information about an e-mail mailing list. Also includes links to other online support groups.
Marfans Research Foundation
- Irish charity with information on fund raising activities and the condition.
MFS Type 1 Fibrillin Gene
- Major resources listed as well as genetic information.
The Mystery of Akhenaten: Genetics or Aesthetics?
- A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
National Marfan Foundation
- Providing accurate and timely information about the disorder to patients, family members and physicians.
Polish Marfan Association
- General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
Questions and Answers about Marfan Syndrome
- From the National Institutes of Health.
Slovak Marfan Association
- The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
South African Marfan Syndrome Organisation
- Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
Swedish Marfan Association
- Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
Univ. of Washington - Marfan Syndrome
- What the disease is and includes the impacts on daily life.
Usenet alt.support.marfan -
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