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Muscular Dystrophies
:Personal Pages
(19)
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Society: Disabled: Personal Pages
(29)
About Muscular Dystrophy
- Personal page with muscular dystrophy links and other personal content by individual with a type of muscular dystrophy called Friedreich's Ataxia.
Angels Among Us
- Inspirational and informational site by a woman with FSH Muscular Dystrophy. Family page with pictures of her children, and MD page of what it was like to grow up 'different'. Guestbook. Florida.
FacioScapuloHumeral Muscular Dystrophy
- Information about FSHD, plus links for organizations, products and services to copy with disabilities.
Haynes Family DMD Info
- The Haynes family talks about their son's Duchenne Muscular Dystrophy and provides information and links on resources, current research and help. South Carolina.
Irina's Cozy Corner and SMA Page
- Personal web page of a Russian woman living with Spinal Muscular Atrophy. Includes information on travel, recipes and psychology. English, Russian and Italian versions.
Jeff Grey
- Jeff's experiences with Duchenne Muscular Dystrophy, especially medical and equipment issues including non-invasive ventilators.
JeffSpace: The Webpage
- About Jeff McAllister, who has Duchenne Muscular Dystrophy. All about his friends, family, interests, disability and life.
The Jones Family DMD Site
- Learn how a family copes with Duchenne Muscular Dystrophy in son, Bradley. Bradley is about 7 years old.
Justin's Locker Room
- A site by, for, and about Justin Sokolowski, a young man with Werdnig Hoffman's disease or a form of SMA. Lots of pictures of friends and family (including his cats), plus pictures of Justin with many pro and semi-pro athletes he's met. Guestbook. Virginia.
Kevin M. Rudolph's Exciting Site
- Kevin, who has Duchenne Muscular Dystrophy, attends the University of Louisville and has a web business as well. Interests, hobbies and accomplishments plus lots of MD links. Kentucky.
Living with Duchenne Muscular Dystrophy
- Stacy Spence, a gentleman from New Zealand, describes his life with Duchenne Muscular Dystrophy.
Living with Muscular Dystrophy.
- Information about MD, Thom's personal experience with Congenital Myopathy, chat room, message board and links.
Mastery of Life
- The personal story of Allan H. Macurdy who by taking control of his own health care decisions, made a major step in learning to live with muscular dystrophy.
Melissa's Page on Spinal Muscular Atrophy
- Personal web page about Spinal Muscular Atrophy. Describes growing up with the disease and current events in Melissa's life.
My Life Caring For My Son Who Has Duchenne Muscular Dystrophy
- Caring for a child with the following problems duchenne muscular dystrophy,congenital adrenal hypoplasia and glycerol kinase deficiency.
Ryan's Cafe
- A young man with Duchenne Muscular Dystrophy who's interested in the internet, reading, music, coffee and his own web design business. A fan of James Bond, he's created a filmography database for the movies. Chat room. Australia.
Suzanne's DMD/Autism Page
- Coping with Duchenne Muscular Dystrophy and Autism, from diagnosis at birth through third grade.
Walk Of Life
- Biography of Chris Barratt, a teenager with Duchenne Muscular Dystrophy
Whose world is Sadbatu?
- Digital art (2D and 3D) by Georg Niedermeier who suffers Duchenne muscular dystrophy.
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